YodaMamma MS & More

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Location: Crescent City, Fl, United States

I am 60, have MS, am an avid cook, love making candles (soy) and watching the endless parade of Nature outside my home. I treat the MS with supplements and LDN, I do not use any of the C.R.A.B. MS meds, we don't get along well. I was married for 13 years, we were together for 15. We are now divorced. Sad, that. I do still love him, but ONLY as the father of my baby. Better to keep it civil, hurts the child(ren) less that way, but is oh-so-hard to do sometimes.

Wednesday, April 27, 2005


Last night I watched Meet the Fockers (love netflix BTW), funny, funny movie!!! I'll definately see it again before I send it back! Then I watchd animam planet, then to bed. I realized I hurt too much to sleep, so off to the medbox, pop a vicodin...aaahhhh sleep. Later, I wake up, go to the bathroom, realize I really don't have to go, chug some V-8, back to bed, wake up again, I'm burning up...too hot, toss off second comforter, still too hot, poke feet out from under comforter. Better. Back to sleep. Wake again, now I'm shivering. Cover back up with second comforter. Later, wake again, too hot again. Toss off second comforter, poke toes out again, L'il Bit jumps up and rubs cold nose on big toe. Then comes up and sits on face, covering nose. Poke nose out, resume breathing. Pet cat, purring intensifies. Go to sleep again, lulled by purring. So I wonder why I'm so tired during the day? What IS a good night's sleep, anyway?
I miss Rob. I know he has to be with Mikey right now, Mike cannot drive himself, so Rob has to help, and might even be able to go by storage and get a few things, since it is pretty much on the way. They are going from Hagersown to northern NY (Cape Vincent) then home sometime in the next few days. I hope. I am so sorry Mike is loseing his Mom. I am glad he has Rob to help him through it. They are more like brothers then most brothers. Mike was the guy that introduced us in the first place, was Rob's best man at our wedding, and is Robbin's Godfather...all in all a pretty important guy to us both (HUGS MIKE)

Sunday, April 24, 2005


Well it looks like Rob and Unkle Mikey might be taking a trip back North, Mike's Mom is dying. She has had quite a few years more then we thought, and not as many as we'd hoped for. She had cancer a few years ago, and was sent home to die, but instead got better and was able to walk and even travel! But it seems now she is ready, though the family isn't! We're not sure how they're going to get there, I doubt Bugly would make it. They might have to rent something. This is going to be very hard on Mike, he is a Mother Hen and does not let go of his people easily. Thank God Rob will be there to help him through it, and the rest of us when he gets home.
My MS has been acting up a wee bit lately, almost every morning I awake with 1/2 of each hand numb, the part which is my thub, and the first two fingers, while the ring anf litle fingers are fine. Same area, both hands. And sometimes when I am in the kitchen cooking dinner the toes of my left foot "dissapear", meaning lose all sensation, and I have to come in and rub the foot hard on the rough texture of the carpet to start to bring it back. Now I know that, as far as MS goes, I have it LOTS better then most, but it is still bothersome and a constant reminder that I do, indeed, have MS. Also the heat/cold thing is really out of whack. I'm either feezing or burning up, in different areas of my body, and it does not seem to matter what the actual temperature is. As I'm sitting here, my right hand is freezing, my left is fine, the toes on my left foot are tingly and kind of numb, my right foot is cold, my right shoulder is HOT up into my face....see? it makes no sense! But then again, neither does MS.

Thursday, April 14, 2005


What do I do with this kid??? He has decided that Mommy needs a new car...well, sure, he IS right, but he doesn't understand that there's a glitch...new cars coat money. He was VERY disappointed when Santa did not bring me the brand new toyota camry (white) that he had decided Santa was going to bring...he looked out at the driveway and asked where the car was? So now, he'll go online and post emails to car dealers, I've gotten about half-dozen calls from dealers, who are always a bit surprised to hear that Robbin is only 7!!! I try to catch him, but apparently I've missed a few...
What a kid!!! Gotta love him!!!

Monday, April 11, 2005


First of all, my throat if almost all better *YAY*
Now, here's a cute story...Robbin, 7, who reads on an almost adult level (he actually reads better then a lot of adults...hopefully you, or if you need I can t y p e v e r y s l o w l y . . .) was sitting on the couch rading one of the handouts anout diabeted the Dr gave me. He suddenly said "no barefoot!" and looked at me, at the PC, as usual, barefoot (of course). He got up, got my Birks, came over and put them one by one on my feet, then stood up and said "There, that's better!" and went upstairs. Too cute!!!
Rob went to the GP, has some bloodwork done (I told him he had to, he had not had a checkup in years), got the results today...Dr. said he's never seen anything like it....Rob is completely Healthy! His bloodwork is textbook Perfect, every count!!!
Rob told the GP about the other Dr wanting to put him on some really nasty toxic stuff, and that he was not going to do it, and he agreed (not that he has a choice, Rob's just not going to take the stuff!)
Anywhoo, Rob has gone over to visit Unkle Mikey and take some pics of his stuff to put on eBay (Mikey is an awesome carver, carves in bone, stone, wood...his detail is insane!). Robin has managed to abscond with two of my three memory sticks...at least I still have the one that is in the camera...I'm sure we'll find the others eventally!

Sunday, April 10, 2005


I have an owwie. I take supplements daily, and sometimes they get caught inn y throat. Well yesterday one of the big calcium ones got stuck, and it took a good long time to dislodge it, meantime it tore up my throat so badly that today I have no voice at all and a very sore throat. I was choking, heaving, trying to dislodge the pill for a long time, and ended up bringing up blood...I knew I was in for some trouble there...finally brought up what was left of it (the pill), so I did not take any more pills at all! I put the remainder in a container for when I heal enough to take them. Fortunately most of my perscription pills are small, and I was able to take them this morning. I wish I could find...and afford...a quality liquid vitamin supplement to take, these pills are so hard on me. But what I find would cost at least $40 a month, and there is just not enough to be able to swing it. *sigh* especially now, we are trying to save some $$ to get a smaller vehicle, and I know my auto insurance is going to come in within the next month or so, I don't even know where we're going to get the funds for that. orry, I don't want this to turn into a pity party. We are trying out a new venture, no idea how it is going to turn out but if it works we will be a bit better off, making wire-wrapped crosses for a church in Louisiana. Rob has mastered them fairly quickly, and if it takes off, the extra we could make from that would help us tremendously.
My MS...I seem to have this newly developed wierdness there...at night when I am asleep, I shiver and moan. Rob said I look like someone tossed nekkid onto a snowbank. Thing is, I'm not cole when it happens. But I shiver myself awake almost every night, and the only thing that stops it is tossing on another blanket (even though I am not cold), then I fall asleep again, and in a bit I awake too hot and have to toss off the extra blanket. What with already being uncomfortable sleeping on a futon, it makes for a very non-restful night. Sorry, pity party again. I wish I knew why the shivering though...it is so very strange.

Thursday, April 07, 2005


Funny thing is, my hair *used* to be very, very curly and frizzy. What one of my hairdressers called "hurricane hair", meaning, it took a hurricane to move it. I called it "poodle hair" and often qestioned Mother about my ethnicity. She thought I was joking. I got tired of everyone telling me that they would "love" having my curls...except they weren't curls, they were frizzes. I would tell them "yeah, but it's not like a perm, if you don't like it, it doesn't grow out". I finally got used to it, always wanting, though, wavey hair. Now with the advent of MS, for some reason, my hair has changed...note the pic Robbin took. It has streaks of silver, very bright silver (not gray, silver like threads) and the rest has gone all dark brown, none of the red that used to highlight it. Yes, I did use color after some years, but mostly to cover gray, the color was what *used* to grow out of my head.. Now it looks like I had very dark brown, almost black, hair. Since I was a wheat blonde as a child, I find this hair evolution very intersing. And now the curl has relaxed to waves, and the frizz, gone. I have no clue as to why, but I like it!
My MS has been behaving of late, passed my one year anniversary of diagnosis. I can walk, but driving is now pretty much a thing of the past :-( at least until we get another vehicle that is easier tog et into and drive for me. I went to the Dr by myself the other day, and ended up with a headache that was killer, and had to drive myself home. I was safe enough, but felt like I was going to pass out by the time I drove up to the house. Rob was very worried, felt he should have insisted on going with me. I guess I'll have to relent and let him drive from now on. So much for "freedom".
The Pope...what can I say? He was a very beloved man. He would possibly be amused by the outpouring of love that is going on in the streets of Rome.
He might be horrified by it, or honored. Honoring him is the intention...but he was a very humble man (for a Pope). I did not always agree with him, but then I'm not a Catholic, so I didn't have to. No-one knows what really happend after Death takes us, so, if we create our own reality in Life, who is to say that we don't do it after Death as well? So maybe, hopefully, he is resting in the arms of the Jesus he so loved. All I do know, is we all watched him go from a robust man to a man in so much pain...and I am glad his end was a peaceful one. He deserved that. He's going to be a hard act to follow!

Friday, April 01, 2005


I think Joyce inserted a cuddlebug in L'il Bit. She is a sticktight to me, always by my side or when I am in bed, literally in my face, purring to beat the band...my "nightie" has an animal pattern, maybe she thinks I'm her mommy? Especially since the pattern almost matches her coat pattern.
It is a sunny, beautiful day out! We have windows open and the air smells fresh and good.
Well, Terry has finally left. I have so many thoughts I won't even go into them. I feel for everyone involved, the parents and the husband. I do not think the law had any right to meddle like it did. 'Nuff said.
Looks like the Pope is also on his deathbed. I am sorry about that, but the poor man has been in so much pain and taken it so stoically that he deserves a peaceful passing. I cannot help but wonder which direction the Church wil go in, now?
It was one year ago today, April 1 2004, that I was diagnosed with MS. SO far so good. I am not on any of the drugs, and aside from pain and occasional numbness (and fatigue) I'm doing OK. I need to get a new pillow, though, sometimes my head and neck hurt so bad that my pillow hurts, feels like it was made of stone. It was also on this date in 1997 that I found out I was pregnant with my sweet Robbin, so this date has so much meaning for me. It is also Razzie's first birthday.I wonder what today will bring?